Autism101

For whatever reason, I’ve seemed to encounter autism in my life far more than the average person. Quite a few of my friend’s children are autistic and some of my best friends ended up with careers in the autism community. With that being said, if there was one thing about autism that I was absolutely positive of before my son was diagnosed, it was this quote from Dr. Stephen Shore: 

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They are wildly different. I feel like I was lucky to have been so exposed to autism and what it meant before Riot’s diagnosis. It definitely weakened the shock value and made it slightly less overwhelming. I know most parent’s who have little-to-normal autism knowledge would just want to curl up in a ball and disappear after hearing their child has been diagnosed with Autism Spectrum Disorder. All of a sudden there are a million things to learn, things to research so you can make the right decisions, like, 10 minutes ago because the younger the better with early intervention! There’s a ton of people coming to your home overloading you with so much information that your brain doesn’t even process it.. you just sit there, stare, smile, and nod as if you’re soaking up every word they are spitting. Then they leave and you OH MY GOD freak out and panic because you don’t remember a thing they said, so now what?! Pizza.

In our house, there’s nothing on the spectrum that pizza can’t fix.

So, yea, the first few months of being a newly diagnosed family REALLY SUCKS. There’s probably a one in a million twenty six chance that if your child ends up on the spectrum the first place you will think of looking for information is on my website.. and if it is.. I think you need to learn how to use the internet better.

This is where I will post the fundamentals of autism (autism for dummies, perhaps.) that I have found to be most helpful, resourceful, comical, bla bla bla all things AUTASTIC. When I’ve added something new over here I will be sure to make note of it in one of my posts so you know to look. OH, and Pinterest. I linked my autistic board to RRRIOTmama and I pin an absurd amount of bullshit on there during the night when I can’t sleep so check that out too.

XO-C

Mama bear.
Mama bear.

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This is the Early Intervention provider that we go through here in Massachusetts. Click on their logo to see if your child is eligible for EI (MA only.)
This is the Early Intervention provider that we go through here in Massachusetts. Click on their logo to see if your child is eligible for EI (MA only.)

 

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infographic-edit
This infographic does an excellent job at summing up Autism. BUT, don’t forget that the spectrum is so SO broad that the traits and red flags are not limited to just these! And there’s also plenty of diagnosed cases where they don’t have many of these developmental issues.. Like Riot!

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postcard_componentsOfAutism
so so SO many different mix and match components.

 

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These are some of the early signs of Autism.. But.. now.. this is where it sucks. A) No one wants to admit that their perfect little baby isn't hitting milestones on time or has "quirks". B) So many of these "signs" are also normal weirdo toddler traits so how the hell are you supposed to know?? If you question it in the least, bring it up to your ped.. tell them that you want to see a developmental ped for an evaluation. If you let this thought linger in your head instead of bringing it up to a doctor, the only person you're hurting is your sweet little baby.. because if in fact they are on the spectrum, the older they get, the more frustrated they're going to become with not being able to communicate how they're feeling with you.
These are some of the early signs of Autism.. But.. now.. this is where it sucks. A) No one wants to admit that their perfect little baby isn’t hitting milestones on time or has “quirks”. B) So many of these “signs” are also normal weirdo toddler traits so how the hell are you supposed to know??
If you question it in the least, bring it up to your ped.. tell them that you want to see a developmental ped for an evaluation. If you let this thought linger in your head instead of bringing it up to a doctor, the only person you’re hurting is your sweet little baby.. because if in fact they are on the spectrum, the older they get, the more frustrated they’re going to become with not being able to communicate how they’re feeling with you.

 

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high-functioning-autism

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Drowning remains the top cause of death for children with autism. During the summer months we often take trips to the beach, lake, amusement parks, etc and they become overstimulated with the crowds and wander/escape to an unsafe environment. (Children with autism are 4x more likely to wander/elope/escape than the neurotypical child)
Drowning remains the top cause of death for children with autism. During the summer months we often take trips to the beach, lake, amusement parks, etc and they become overstimulated with the crowds and wander/escape to an unsafe environment. (Children with autism are 4x more likely to wander/elope/escape than the neurotypical child)